Stakkels Avery

Stødte på denne sørgelige blog i dag. Det er en lille pige, som lider af en genetisk sygdom kaldet 'spinal muskulær atrofi', hvilket gør, at hun maks. bliver 18 mdr gammel - og hun kan ikke bevæge arme eller ben.

Hendes forældre har lavet en hjemmeside med en såkaldt 'bucket list' - en liste over ting, hun skal nå, inden hun dør (okay hun nåede vist ikke dem alle); dette for at skabe omtale for sygdommen SMA, som er uhelbredelig.

Nu er hun så netop død d. 30. april - hvor ser hun sød ud; stakkels lille pige:

Hello everyone this is Avery's father.  Avery passed away yesterday sometime around 3pm due to pulmonary complications related to SMA.  In short, one of her lungs collapsed and she went into cardiac arrest.  I immediately performed CPR on her and was able to bring her back to life, but only for a brief period of time before she passed away shortly after arriving at the hospital.  Avery's passing this quickly came as a complete shock to all of us, as she had just been given a thumbs up at her last doctors appointment only three days ago. While we were aware of the severity of her diagnosis, we never lost hope for Avery and even in her passing, we still have hope for our daughter and all of her friends. 

http://averycan.blogspot.com/